{"id":8895,"date":"2023-01-31T10:43:07","date_gmt":"2023-01-31T09:43:07","guid":{"rendered":"https:\/\/www.aieop.org\/web\/?p=8895"},"modified":"2023-01-31T10:43:07","modified_gmt":"2023-01-31T09:43:07","slug":"meet-aieops-working-groups-bone-marrow-failure","status":"publish","type":"post","link":"https:\/\/www.aieop.org\/web\/meet-aieops-working-groups-bone-marrow-failure\/","title":{"rendered":"\u200bMeet AIEOP\u2019s Working Groups: Bone Marrow Failure"},"content":{"rendered":"

MEET AIEOP’S WORKING GROUPS!<\/span><\/strong><\/h3><\/h2><\/span>
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Meet AIEOP’s\u00a0Bone Marrow Failure Working Group
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\nCoordinator\u00a0Francesca Fioredda<\/b><\/span><\/div>\n
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Tell us a little bit about your background as Coordinator of the working group?<\/b><\/span><\/div>\n
I have been committed to bone marrow failure since 2000 being one of the main promoters of the\u00a0 Italian\u00a0<\/span>NeutropeniaRegistry since its creation in \u00a02004.\u00a0 Starting in 2006, the original “Neutropenia Study Group” incorporated the scientific activities regarding aplastic anemia and \u00a0progressively other bone marrow failures (BFM) such as:\u00a0<\/span>Diamond-Blackfan anemia<\/span>, d<\/span>yskeratosis congenita,<\/span>\u00a0Fanconi anemia, Shwachman-Diamond Syndrome and a<\/span>utoimmune lymphoproliferative syndrome\u00a0<\/span>(ALPS). I have been coordinating the group since 2017 carrying out the high quality scientific work set up by the two previous colleagues.\u00a0<\/span><\/span><\/div>\n
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What is the overall goal of the WG?<\/b><\/span><\/div>\n
The primary goal has\u00a0been to deepen the knowledge of these rare disorders, trying to reach common definition and management mainly in those presenting with a high degree of deformity. Increased knowledge and shared understanding are able to guarantee equal opportunities for the affected children all over our country.\u00a0\u00a0<\/span><\/div>\n
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What has been your WG\u2019s greatest accomplishment?<\/b><\/span><\/div>\n
Thanks to a number of collections and studies performed within the group over time, the overall knowledge on some BMFs has significantly increased and the scientific level has been up-graded being in line with the most important study groups on bone marrow failure worldwide.\u00a0\u00a0<\/span><\/div>\n
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What message do you have to the international medical community?<\/b><\/span><\/span><\/div>\n
\u00a0The collaborations and the setting up of registries on rare disorders are at the basis of an evolving knowledge and application of possible new diagnostic and therapeutic tools. We look forward to continuing the work enlarging \u00a0fields of interest and involving new partners.\u00a0<\/span><\/span><\/div>\n<\/div>\n<\/div>
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